Informed Consent |
LUMEN respects the individual rights of all individuals and these rights are not to be violated. All participants in studies have the right to decide what happens to the personal data collected during a study (those data that are identifiable), but also to what they have verbally expressed during a study (or an interview), and to any photograph of them taken during study.
The right to decide applies also to the use of images of people in vulnerability (e.g. refugees,patients, minors). For all the situations in which the authors involve human subjects whose emotional, mental or physical states may be influenced/modified by the study context, the researcher/author should obtain a prior written informed consent from those involved. The securitization of written consent before including images is needed also.
Details of identification such as name, date of birth, identity number, biometrical characteristics or/and other identification of the participants enrolled in the study should not be published, neither in written descriptions, photographs, nor genetic profiles. In special cases, it is possible for this kind of information to be used publicly, when it is considered essential for scholarly purposes, based on the participant's written informed consent for publication. In case of minors or individuals incapable of consent, a legal guardian will give the written informed consent on their behalf.